Creating a Safe Space for Scarlett: Our Journey with Emily’s Star

Our Story

My daughter Scarlett, who is 11, and I have been registered with Emily’s Star for around 5 or 6 years. Scarlett has a rare genetic condition called DYRK1a syndrome, which affects her verbally, physically, and mentally in all aspects. At first, I was too shy to ask for help, but Emily’s Star soon changed that.

Incredible Support for Our Family

They have provided us with so much, I don’t even know where to begin. On the physical side, their wonderful shop has been a lifesaver. I’m still amazed by it! It’s a huge relief knowing we don’t have to worry about basic needs like toiletries. They also offer events that entertain not just Scarlett but also my stepson. Every event we attend makes us feel so grateful and lucky to have found such a safe space for both children. The anxiety of life melts away when we step into an Emily’s Star event.

Emotional Support and Community

Emily’s Star also provides emotional support. I can now reach out to them with complete ease, whether by popping into the office or through their fantastic Facebook community page. You always get a prompt response because they are truly always there for you. There is never any judgment, and even if I can’t attend an event or if an event isn’t suitable for Scarlett, they never make me feel bad. They understand the need to cater to a wide range of children with varying needs, and they always make sure you feel appreciated.

A Special Moment: Ice Skating December 2024

A highlight for us has been the ice skating event held in December 2024. It made me quite emotional. Scarlett is very unsteady on her feet, and although I try to ensure her disability never holds her back, I thought ice skating was out of the question. But at Emily’s Star’s ice rink, filled with wheelchairs and children like Scarlett, we took the plunge as a family—and we had so much fun! It truly meant the world to see my little girl, with wobbly legs, skating on the rink. These may seem like small things, but they mean everything to us.

How Emily’s Star Has Changed Our Lives

Over the years, I’ve seen how Emily’s Star has evolved and improved. It’s only gotten better and better. Katie is always reaching out, finding new ways to support us, and I honestly don’t know what more she can do! The fact that she’s always there for us through both big and small moments is incredible. With any child with special educational needs (SEN), you often feel anxious, stared at, and judged. But in a group like this, our children become the norm, and I don’t even notice the stares anymore.

Cherished Events: Halloween and Christmas

We couldn’t live without Emily’s Star, especially for their annual events like Halloween and Christmas. These events are so special for our children, and we always look forward to them. Seeing the excitement on Scarlett’s face as she runs ahead of me is such a freeing feeling.

Thank You to Katie and the Team

So, thank you, Katie and the team, for all you’ve done and continue to do for us. We hope you know how cherished and loved you are!